Wednesday, April 3, 2013

A note about Shane Burcaw and Laughing at My Nightmare

By now you may have seen this video about Shane Burcaw, which premiered on last Friday.

Quite simply, this video is the story of how a positive attitude turned into the non-profit called Laughing at My Nightmare (LAMN). And all because Shane's zeal, his passion for life, and his love for his family and friends are too strong to keep quiet.

But more than that, because spinal muscular atrophy (SMA), a genetic neuromuscular disease, is believed to affect as many as 10,000 to 25,000 children and adults in the United States, and therefore it is one of the most common rare diseases in this country. And through this Shane has chosen to live. He refuses to be defined by this disease. And he continues to look forward to the future with a vision for LAMN that sees far beyond these present days.

Shane Burcaw and friends
What we've learned about Shane, more than anything, is that he is abundantly blessed with family and close friends who have also become part of the journey. But we also realized that because SMA and its effects are part of Shane's story, they are now also part of ours. And we are committed to helping this non-profit venture become as vibrant and awesome as one of Shane's ever-present smiles. Occasionally, we'll be featuring 'bloopers' and outtakes of our time with Shane while shooting this documentary so you can experience his sense of humor and wittiness firsthand. We've also decided to donate $1 (up to $1,000) for every 'Like' of our Facebook page until Friday.

The intent here is not to guilt you into something. Rather, we are trying to provide a vehicle for a massive online community to act — whether you know Shane, whether you have been touched by his story in some way, whether you love someone who knows and loves him — however you stumbled upon this video and the story behind Laughing at My Nightmare, we want you to be able to help if you want to.

We hope that in the creation of this LAMN documentary, this blog post and our Facebook page, we’re able to offer you a very tangible way to support someone we are blessed to know.

Thank you for watching!

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